PROMOTION OF HEALTHCARE AND RESEARCH ON RARE DISEASES

AFTERNOON SESSION

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Dr. Domenica Taruscio
National Centre Rare Diseases, Istituto Superiore di Sanita, Italy

Italian experience on rare diseases and orphan drugs: legislation and organization

Prof. Mirko Spiroski
Institute of Immunobiology and Human Genetics, Republic of Macedonia

Rare diseases and orphan drugs in the Republic of Macedonia

Prof. Mirando Mrsic
University Hospital Zagreb, Croatia

Health care model in a transition economy: Croatian model of financing rare diseases

Dr. Erik Tambuyzer
Genzyme Europe

Orphan Medicines: Perspective from a biotech company

Prof. Emil Simeonov
University hospital "Alexandrovska", Sofia, Bulgaria

Molecular studies in structural chromosomal aberrations

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Dr. Rumen Stefanov
Bulgarian Association for Promotion of Education and Science (BAPES)

The Information Centre for Rare Diseases and Orphan Drugs as a promoter of research of rare diseases